The Super Gav 5k and Super Kids Fun Run was a HUGE success!! With the help of our event sponsors, Merchants Bank and The German American Police Program along with other Winona area sponsors and more than 300 5K runners and 100 Super Kid participants we raised 17.840 dollars! This money will go to The Gavin Quimby Research Fund at the University of Minnesota Masonic Children's Hospital. This money will benefit the Leukodystrophy Center and treat children with leukodystrophy. The success of this race gives hope for more options, support, and success stories for those families affected by Leukodystrophy.
A BIG thank you to all of our Super Heroes who came together to support our 1st Annual Super Gav 5K! Our first year was a huge success with more than 300 racers registered for the 5k and more than 100 children registered for the Super Kids Race. Thanks to the amazing support of our community sponsors and registrations we met our goal of raising more than $15,000 for The Leukodystophy Center at The University Of Minnesota's Masonic Children's Hospital. All proceeds will go towards The Gavin Quimby Research Fund. Thank you for joining us with our mission to help children with leukodystrophy!
Results for this year's 5K Race can be found at: winonatiming.weebly.com
Gavin Flying For A Cure was created to honor Gavin Quimby (Super Gav) and to bring awareness to Metachromatic Leukodystrophy (MLD). MLD is a devastating, genetic, neurological disease that Gavin was diagnosed with at age three and died of complications from treatment at age five. His parents Nick and Shanna Quimby along with Senator Jeremy Miller and Minnesota's Newborn Screening Committee passed a bill named The Super Gav Act to test newborns for several rare diseases.
This Newborn Screening bill was made to detect and treat diseases successfully before symptoms present. Since The Super Gav Act came into effect in February 2016, twenty children have come back positive for ALD! These children are now being monitored at The Leukodystrophy Center at the University of Minnesota Masonic Children's Hospital. These children now have a future because of Newborn Screening.
The Gavin Quimby Research Fund was established by The Calliope Joy Foundation in 2018 to raise money for research, treaments and helping other children with MLD. For more information on how you can help others like Gavin go to CureMLD . CLICK HERE TO DONATE TO THE GAVIN QUIMBY RESEARCH FUND
Gavin was treated at this hospital by Dr. Paul Orchard, and other truly exceptional specialists with a bone marrow transplant to treat MLD.
Although the treatment was unsuccessful for Gavin we will always hold these wonderful people in our hearts for all that they did for us. The staff at the U of M Masonic Children's Hospital always had hope, strength, love, and an endless fight to give Gavin the best treatments possible. Because of this, we want to honor our son by helping other children like him by utilizing The Super Gav Act for early Newborn Screening detection for leukodystrophy.